Counting Down

Hi again, friends! Today is the day Mom comes to be with me and Dad. I'll tell ya, Dad is great and I'm super happy to have him, but there's just something about a Mommy that no one can replace (I mean seriously, just look at her here, will ya!). It will be so much fun for all three of us to be together again.

It's been a busy few days here at Boston Children's. They had told me they were going to try again to stick that needle in my belly button. Ouch the first time! But Dad said having it would make it so they don't have to keep sticking me other places. But then all the doctors and nurses got together to talk about my heart. They decided they would have surgery on me the very first day of my first winter, Tuesday (12/21).
Aunt Jen says early that morning there will be a total eclipse of the moon for the first time in 3 years, and that lots of good energy will be headed my way! She talks kind of crazy but I think it sounds nice.

Since they scheduled the surgery for a few days later they agreed they would put that needle back in my belly button when I'm asleep. Whew. Dad finally got to take all his clothes and stuff to a real room where he could take a shower and get a little rest. Thank goodness too. I didn't want to say anything but... well, I'm glad he found a better place to sleep than on the floor by me. It didn't look very comfortable.

Oh, I almost forgot to tell you! When we were flying up Dad showed me the Statue of Liberty. He said it has a lot to do with why we have special doctors and nurses who know what to do with my heart, and why we are able to get up to where they are so they can help me. I sure am glad that green lady is there!

I have lots more stories but these hiccups just won't go away and I need to get some beauty rest before Mom gets here. Ohhhh... I might be too excited to sleep!

I really loved hearing all the sweet messages from friends after my last story. It was also really nice to hear from people who have been where I am and are doing well now, like CHD Fighter, Chase, Jack (thanks for the great report on Children's Boston) and Sam (with his clever comment that together we'd have one fully functioning heart - so true). Thank you all for thinking of us.