|Will, Nikki, Matt Matt at Dauphin Island|
It's now April of 2013 and I'm a happy, healthy (if you overlook my tiny little congenital heart defect), loving boy. I am surrounded by family who seem to think I'm the world's greatest comedian so I do my best every day to live up to that expectation. So far my efforts appear to be a smashing success.
I love to be outside better than just about anything on this earth and I don't care if the sun is shining or it's a hurricane... "OUTSIDE" is my favorite word and I utter it often!! And if I have my choice "outside" also means in the sand on the beach and that's pretty much my heaven.
I've had two surgeries on my heart already but those are now just memories for me. In May I'll be back at Boston Children's Hospital for my 3rd and (hopefully) final heart surgery of my youth. I'm looking forward to seeing my old friends Dr. Baird and Dr. Breitbart, as well as all the awesome nurses and techs that look after me while I'm there.
One other update - I'm not exactly sure what this means but I've noticed Mom's tummy is getting large enough for me to rest my head on and I've heard the words "expecting" and "pregnant" a few times but I'm not quite sure what's going on. I'll keep you posted as I learn more about this development!
I’m Matthew, Will & Nikki McClurg's first baby. I'll be born in a few weeks in Boston, MA. Mom and Dad will travel there on Dec. 19th, to be close to The Children's Hospital in time for me to be born. This is where the special doctors work, the ones who can take care of me and fix the problems with my heart.
The doctors call my problem Hypoplastic Left Heart Syndrome with Endocardial Fibroelastosis. Those are really big, scary words that I don't really understand. I will have 3 surgeries within my first two years of life; the first one will be done within 7 days after I'm born. My family is sad that I will be sick, but they trust God and my doctors to make me well. I am sad that Mom and Dad will be far from home this Christmas, but I sure do love them for doing this for me. I hope we can come home to Daphne, AL by Valentine's Day.
- Sucking my thumb
- Getting hiccups
- Listening to mom and dad talk about me
- Jumping rope (this rope is useful for all kinds of stuff!)
- Sometimes I even kick the walls in here just to make sure Mom’s paying attention